This article was updated 13 February 2024. It's happening again. The young woman was so weak she could barely tap out a few words from her hospital bed, but she wanted to let the outside world know what was happening to her. The doctors had decided to take away her NG tube. They'd decided her… Continue reading Malnutrition and ME/CFS: the NHS is still getting it wrong.
Tag: NHS
A life cut short by medical neglect: interview with Sarah Boothby, whose daughter Maeve died at 27 of severe ME/CFS
I spoke with Sarah Boothby over zoom on 19 May, 2023. Our discussion was wide-ranging, and I've cut down and rearranged what was said for length and clarity. Maeve's story is profoundly upsetting, and discretion is advised. Maeve Boothby-O'Neil. I requested a photo and received this with the note: "She did not want to be… Continue reading A life cut short by medical neglect: interview with Sarah Boothby, whose daughter Maeve died at 27 of severe ME/CFS
ME/CFS Medical Education Campaign 