World-renowned paediatric ME/CFS specialist Dr Nigel Speight discusses a disturbing scenario: severely ill young people with ME/CFS and their families are persecuted by the healthcare professionals. This is a difficult video to watch, but it is incredibly important. https://www.youtube.com/watch?v=gAoQeyTXWWQ
Category: Clinical
Malnutrition and ME/CFS: the NHS is still getting it wrong.
This article was updated 13 February 2024. It's happening again. The young woman was so weak she could barely tap out a few words from her hospital bed, but she wanted to let the outside world know what was happening to her. The doctors had decided to take away her NG tube. They'd decided her… Continue reading Malnutrition and ME/CFS: the NHS is still getting it wrong.
Job advert shows that NHS trust flouts NICE guidance
The logo of the Oxford University Hospitals NHS Foundation Trust. A disturbing job advert has come to light which shows that outdated, unscientific and harmful attitudes to ME/CFS are still alive and well in the NHS. The ad, for the Oxford University NHS Foundation Trust, is for a clinical psychologist to divide their time between… Continue reading Job advert shows that NHS trust flouts NICE guidance
New free short module on severe ME/CFS
In honour of Severe ME Day (8 August) Dr. Nina Muirhead of Doctors with ME has teamed up with Learna to offer new educational content on severe ME/CFS. 25% of people with ME/CFS have the severe form of the illness. They are profoundly ill and have complex care needs, yet few healthcare professionals receive training… Continue reading New free short module on severe ME/CFS
Even a gentle exercise program could cause lasting harm to patients with ME/CFS or long Covid
Exercise: it's good for nearly everyone. Photo: Cliff Booth/Pexels. In honor of this year's ME Awareness day we're sharing a very simple message: for patients with long Covid or ME/CFS, exercise can be dangerous. We know, we know: exercise is supposed to be the cure-all, the one piece of advice that can be safely given… Continue reading Even a gentle exercise program could cause lasting harm to patients with ME/CFS or long Covid
Doctors’ lack of training leads to malnutrition danger for patients with severe ME/CFS
Update: as of March 1, Alice Barnett has had a feeding tube inserted and is receiving nutrition. Some patients with very severe ME will require tube feeding, either enterally or parenterally. There can often be a significant delay in implementing this, due to professional opinion, allowing the patient to become severely malnourished. Healthcare professionals may… Continue reading Doctors’ lack of training leads to malnutrition danger for patients with severe ME/CFS
Doctors’ reluctance to diagnose ME/CFS has horrific consequences for children
Dr Nigel Speight is a pediatrician, now semi-retired, with a special interest in myalgic encephalomyelitis (ME). The following is an excerpt from an interview carried out by Rob Wijbenga, chairman of the Dutch ME/CFS Association. In it, Dr Speight describes how doctors' inability to confidently recognize and diagnose ME/CFS can result in an alternate 'explanation'… Continue reading Doctors’ reluctance to diagnose ME/CFS has horrific consequences for children
ME/CFS Medical Education Campaign 