I spoke with Sarah Boothby over zoom on 19 May, 2023. Our discussion was wide-ranging, and I've cut down and rearranged what was said for length and clarity. Maeve's story is profoundly upsetting, and discretion is advised. Maeve Boothby-O'Neil. I requested a photo and received this with the note: "She did not want to be… Continue reading A life cut short by medical neglect: interview with Sarah Boothby, whose daughter Maeve died at 27 of severe ME/CFS
Tag: malnutrition
Doctors’ lack of training leads to malnutrition danger for patients with severe ME/CFS
Update: as of March 1, Alice Barnett has had a feeding tube inserted and is receiving nutrition. Some patients with very severe ME will require tube feeding, either enterally or parenterally. There can often be a significant delay in implementing this, due to professional opinion, allowing the patient to become severely malnourished. Healthcare professionals may… Continue reading Doctors’ lack of training leads to malnutrition danger for patients with severe ME/CFS
ME/CFS Medical Education Campaign 