I spoke with Sarah Boothby over zoom on 19 May, 2023. Our discussion was wide-ranging, and I've cut down and rearranged what was said for length and clarity. Maeve's story is profoundly upsetting, and discretion is advised. Maeve Boothby-O'Neil. I requested a photo and received this with the note: "She did not want to be… Continue reading A life cut short by medical neglect: interview with Sarah Boothby, whose daughter Maeve died at 27 of severe ME/CFS
Tag: NICE guidelines
The NHS must provide mandatory training on ME/CFS – our submission to the APPG
The All-Party Parliamentary Group on Myalgic Encephalomyelitis will be meeting later this month, and we've submitted a short statement for their consideration, which is also pasted below. Please urge the NHS to provide mandatory training on ME/CFS to doctors. Most doctors receive no training on ME/CFS, either during their time at medical school or after,… Continue reading The NHS must provide mandatory training on ME/CFS – our submission to the APPG
ME/CFS Medical Education Campaign 