'Life with a low battery' is a 6-minute video which is perfect for introducing ME/CFS to family and friends of someone living with the illness. ME/CFS is a complex, multisystem, energy-limiting illness which is often misunderstood, leaving patients struggling to get the understanding and support they need. Now the experts at the Bateman-Horne Center have… Continue reading ‘Life with a low battery’: a wonderful short cartoon explains ME/CFS in a relatable way
Tag: ME/CFS
New video series brings clarity to ME/CFS and long Covid’s frequently-misunderstood symptom: post-exertional malaise (PEM) aka post-exertional symptom exacerbation (PESE)
PEM is the unique and pathognomonic symptom of ME/CFS, meaning that if a person has PEM they have ME/CFS and vice versa. Some but not all long Covid patients experience PEM; these patients should be investigated for ME/CFS. (Long Covid and ME/CFS are not mutually exclusive; a person can have both.) PEM is frequently misunderstood,… Continue reading New video series brings clarity to ME/CFS and long Covid’s frequently-misunderstood symptom: post-exertional malaise (PEM) aka post-exertional symptom exacerbation (PESE)
A life cut short by medical neglect: interview with Sarah Boothby, whose daughter Maeve died at 27 of severe ME/CFS
I spoke with Sarah Boothby over zoom on 19 May, 2023. Our discussion was wide-ranging, and I've cut down and rearranged what was said for length and clarity. Maeve's story is profoundly upsetting, and discretion is advised. Maeve Boothby-O'Neil. I requested a photo and received this with the note: "She did not want to be… Continue reading A life cut short by medical neglect: interview with Sarah Boothby, whose daughter Maeve died at 27 of severe ME/CFS
ME/CFS Medical Education Campaign 