Clinical, Pediatricians, Pediatrics, severe ME

Children with severe ME/CFS taken into custody

World-renowned paediatric ME/CFS specialist Dr Nigel Speight discusses a disturbing scenario: severely ill young people with ME/CFS and their families are persecuted by the healthcare professionals. This is a difficult video to watch, but it is incredibly important. https://www.youtube.com/watch?v=gAoQeyTXWWQ

Patient experience, Pediatrics, severe ME

A mother of a child with severe ME/CFS describes troubling experiences of medical harm and accusations of abuse in healthcare settings

Children with severe ME/CFS and their families all too often face misunderstanding and accusations of abuse in healthcare settings. There is little awareness of these experiences, in part because many families are understandably unwilling to share their stories. I'm very grateful to Tina Rodwell, who is a full-time carer for her son Angus, for sharing… Continue reading A mother of a child with severe ME/CFS describes troubling experiences of medical harm and accusations of abuse in healthcare settings

Clinical, General practitioners, Pediatrics

Doctors’ reluctance to diagnose ME/CFS has horrific consequences for children

Dr Nigel Speight is a pediatrician, now semi-retired, with a special interest in myalgic encephalomyelitis (ME). The following is an excerpt from an interview carried out by Rob Wijbenga, chairman of the Dutch ME/CFS Association. In it, Dr Speight describes how doctors' inability to confidently recognize and diagnose ME/CFS can result in an alternate 'explanation'… Continue reading Doctors’ reluctance to diagnose ME/CFS has horrific consequences for children