Patient experience, Pediatrics, severe ME

A mother of a child with severe ME/CFS describes troubling experiences of medical harm and accusations of abuse in healthcare settings

Children with severe ME/CFS and their families all too often face misunderstanding and accusations of abuse in healthcare settings. There is little awareness of these experiences, in part because many families are understandably unwilling to share their stories. I'm very grateful to Tina Rodwell, who is a full-time carer for her son Angus, for sharing… Continue reading A mother of a child with severe ME/CFS describes troubling experiences of medical harm and accusations of abuse in healthcare settings